RD-Portugal, União das Associações das Doenças Raras de Portugal

The RD-Portugal is a non-profit entity, in the form of a federation, that promotes the defense and advocacy of the rights and interests of people affected by Rare Diseases and/or by disabilities caused by them, as well as their families, aiming at the social and familial integration of its members, mitigating inequality and discrimination against these individuals. 

The RD-Portugal represents the more than 46 Rare Disease Associations that comprise it, before public and private entities at both national and international levels, particularly at the European level. Its mission is to bring Rare Diseases to the forefront every day of the year, not just on Rare Disease Day. As such, it actively participates in actions directly related to health policies, Reference Centers, initiatives promoting data registry creation, and the fight for universality and equity in access to orphan medicines.

It is a member of the National Mirror Group of ERDERA (European Rare Disease Research Alliance) and the Portuguese member of the National Alliances Council of EURORDIS.